Dick Malott (from the world of applied behavior analysis) posts his workshop notes and I find them to be quite useful, so I decided to give it a try as well. Let me know what you think. Should I do it again? Does it help?
Here was the workshop description:
Changing Organizations to Deliver Services that Lead to Community Inclusion by Sarah Gimson, MA
Director of Training and Certification
The Council on Quality and Leadership
National policies, such as the Home and Community Based Service (HCBS) Settings Final Rule, create an imperative for organizations to change the way they provide services to people with developmental disabilities. These new regulations are aimed at maximizing opportunities for people with developmental disabilities to access the benefits of their communities and receive services in the most integrated setting. In order to accomplish this, service providers must support people to realize choice, individual rights, and autonomy. This session will focus on current trends in disability services and strategies to develop and implement supports that help people achieve the lives they want and be included in their communities.
My notes (and the questions I was left thinking about). Feel free to dialogue with me about the questions as I don’t think there are easy answers.
(Note: these are not edited or such, this is just what I wrote down)
The workshop slides: DD Lecture Series Community Inclusion
Where we are now:
Living in congregate settings
Community is the relationships we build we each other not just the place outside the door. Reciprocal relationships
Culture of segregation
Why is this still happening? Systems tend to perpetuate this.
Small simple things we take for granted and make sure everyone can do (eat a snack at any point, choose meal)
Fair- ask what client needs to do to get something (eg get iPad full time?)
Abuse- knowing where their boundaries are (not just physical but lending money, etc)
Integrated environments- where they recreate?
Social roles- contributions they are making, they have value and status
Respect- big R: views people are capable and have great expectations
Staff came back and refolded towels, made person feel small
Shared leadership: do people accessing your services serve on the board??
You talk to other people when buying a house but in the end YOU decide.
Working- make sure staff are in the background
Can take video for resume to show employer how the person actually performs
Leisure-How to have FUN!! Going for it!!!
At restaurant, who is ordering the food? Who is giving the money? We have told the cashier and waitress don’t talk to this person.
Break down barriers: helps with community culture and break down barriers.
Social capital: giving and receiving relationships, reciprocity, interdependence (we serve and need each other)
What is stopping us: physical integration is not the same as social integration; enforced segregation vs. chosen comradery
Related this to women’s rights movement. Women were thought of as feeble, unable to make decisions for themselves.
People are people and we should see people as people.
Issues re employment may be founded in our own beliefs and not in reality
Communication: expression of preferences happens in a variety of ways
Imagined risk and real risk. Ask yourself risk questions (from slide). Assign number values to the response (1-10) (eg likelihood of ticket re no seat belt, likelihood of infection from tattoo)
Michael Kendrick wrote paper (standardized service models) on what can happen to help organizations move forward. Standardized Service Models
Moving away from fixed service model
Create action plan
Create focus groups: co-creating future, not just telling them what you are doing
Find out what other people are doing. Who is inspiring you and getting things done well? Try and replicate that
Re-stating shared leadership.
Hungry for learning more.
Get stakeholders together to develop the vision
Remember to celebrate success!! Put it in your action plan: when we accomplish this then we will celebrate by doing (x)
Partners in policymaking course is recommended
Individualized budgets- money follows the person who is supported.
Government (Medicaid), Grants, fundraising, kickstarter, collaboration
If you don’t ask, you don’t get. Not just federal or state grants.
Trying something and getting it wrong is better than trying nothing.
CQL website has manual on “what really matters” and it contains research info on it.
Here is a copy of the manual I found for person-centered planning for mental illness. What Really Matters
All risk is not bad.
Other resources: Supported Decision Making guide Supported Decision Making