Workshop Notes: DD Lecture Series

Dick Malott (from the world of applied behavior analysis) posts his workshop notes and I find them to be quite useful, so I decided to give it a try as well. Let me know what you think. Should I do it again? Does it help?

Best wishes
Karen

Here was the workshop description:

Changing Organizations to Deliver Services that Lead to Community Inclusion by Sarah Gimson, MA

Director of Training and Certification
The Council on Quality and Leadership
Towson, MD

National policies, such as the Home and Community Based Service (HCBS) Settings Final Rule, create an imperative for organizations to change the way they provide services to people with developmental disabilities. These new regulations are aimed at maximizing opportunities for people with developmental disabilities to access the benefits of their communities and receive services in the most integrated setting. In order to accomplish this, service providers must support people to realize choice, individual rights, and autonomy. This session will focus on current trends in disability services and strategies to develop and implement supports that help people achieve the lives they want and be included in their communities.

My notes (and the questions I was left thinking about). Feel free to dialogue with me about the questions as I don’t think there are easy answers. 

(Note: these are not edited or such, this is just what I wrote down)

The workshop slides: DD Lecture Series Community Inclusion

Community Inclusion workshop notes:

Where we are now:
Living in congregate settings

Working- not where we want to be

Leisure-

Community is the relationships we build we each other not just the place outside the door. Reciprocal relationships

Culture of segregation

Why is this still happening? Systems tend to perpetuate this.

Small simple things we take for granted and make sure everyone can do (eat a snack at any point, choose meal)

Fair- ask what client needs to do to get something (eg get iPad full time?)
Abuse- knowing where their boundaries are (not just physical but lending money, etc)
Integrated environments- where they recreate?
Social roles- contributions they are making, they have value and status

Respect- big R: views people are capable and have great expectations
Staff came back and refolded towels, made person feel small

Shared leadership: do people accessing your services serve on the board??

You talk to other people when buying a house but in the end YOU decide.

Working- make sure staff are in the background
Can take video for resume to show employer how the person actually performs 

Leisure-How to have FUN!! Going for it!!!

At restaurant, who is ordering the food? Who is giving the money? We have told the cashier and waitress don’t talk to this person.

Break down barriers: helps with community culture and break down barriers.

Social capital: giving and receiving relationships, reciprocity, interdependence (we serve and need each other)

What is stopping us: physical integration is not the same as social integration; enforced segregation vs. chosen comradery

Related this to women’s rights movement. Women were thought of as feeble, unable to make decisions for themselves.

People are people and we should see people as people.

Issues re employment may be founded in our own beliefs and not in reality

Communication: expression of preferences happens in a variety of ways

Imagined risk and real risk. Ask yourself risk questions (from slide). Assign number values to the response (1-10) (eg likelihood of ticket re no seat belt, likelihood of infection from tattoo)

Michael Kendrick wrote paper (standardized service models) on what can happen to help organizations move forward. Standardized Service Models

Moving away from fixed service model

Create action plan
Create focus groups: co-creating future, not just telling them what you are doing

Find out what other people are doing. Who is inspiring you and getting things done well? Try and replicate that

Re-stating shared leadership.
Hungry for learning more.
Get stakeholders together to develop the vision

Remember to celebrate success!! Put it in your action plan: when we accomplish this then we will celebrate by doing (x)

Partners in policymaking course is recommended

Individualized budgets- money follows the person who is supported.

Funding:
Government (Medicaid), Grants, fundraising, kickstarter, collaboration
If you don’t ask, you don’t get. Not just federal or state grants.

Trying something and getting it wrong is better than trying nothing.

CQL website has manual on “what really matters” and it contains research info on it.
Here is a copy of the manual I found for person-centered planning for mental illness. What Really Matters

All risk is not bad.

Other resources: Supported Decision Making guide  Supported Decision Making

Questions:

What does this look like for more severe disabilities?? What about what the guardian thinks is best??
Love the ideas but how does this work with the funding
How do we take this idea and work collaboratively with provider agencies?
This all sounds great but how do we make it work in the real world??
How can we provide more intensive individual supports within this model?
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Apps

After sharing apps with various clients, I’ve decided it make sense to share them everyone. I’m going to try and regularly post about new apps or assistive technology I’ve found useful with individuals I work with.

First up, I have to give credit to a parent who shared this app.

Name: SceneSpeak

Publisher: Good Karma Applications

Website: http://www.goodkarmaapplications.com/scene-speak1.html

Cost:  $9.99

User manual/Instructions: Yes. Full user manual available for download from developer

Pros: Easy to program and use, can resize hotspots, can record your own speech or use text-to-speech, can use your own pictures or easily import from internet, can share pages/books between devices

Cons: You have to create individual pages first before combining into a book. It would be great if you could add a new page from within a book so you don’t have to keep going back. There could already be a way to do this that I have yet to discover

Ways I use it/Why I love it: It is SO EASY and fast to program. I have made pages/books during a session with student. I’ve used it as a motivator, as a way to try and get vocal imitation, as a social story, and as a way to test receptive identification (with a built in auditory reinforcer).

I’m going to try and use this same format as I post other apps. Let me know what you think and/or what apps you are trying to find or have found.

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Who we are

We are educators and family members who are invested in expanding the potential of individuals with disabilities.

Founded by Karen Umstead back in 2002, Beautiful Minds of Princeton has gone on to serve many schools, agencies, and families. Our main areas of service include education, autism spectrum disorders, behavior, social skills, inclusion, and transition.

Check out our website: www.beautifulmindsofprinceton.com for more info on what we do and who we are.

Thanks for reading!! Hope the info you find here is useful.

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